Chronic illness
Is part of your life ?
How to cope ?
How to respond ?
Personal website
No medical advice
No manuals
No receipes
Tips and ideas
Discussion items
Food for thought
Newest pages
Printing now perfect
Changed June 2006
Going out
Invitations, parties and dinners
Added April 2006
Coping with responses to
(in)visible diseases
Added Dec. 2005
Being chronically ill means part of you is not ill.
This website is about that part of being ill… the part of you that doesn't hurt or ache, that isn't less able or exhausted.
The part of you that tries to live life as it comes.
Your chronic illness may differ every day. Yet you are still you. You and me, we all cry, enjoy, party, laugh, hug.
Being long term ill doesn't change that.
We talk about the news, our jobs, our kids, our prides and worries. We are not a patient every hour of the day, yet we have our limitatons.
Sometimes your disease gets the better of you.
Then you feel it controls you. How to deal with those days?
People may even hurt you
Hurt you even with their ignorance, with well meant offered help, or by asking frightening questions.
But how should they know? I didn't know either before I got ill. Healthy people cannot easily comprehend all aspects of your life. Understand its limits or its capacities.
It is you who has to show them.
Yet I do not inform everybody that I meet; well, I simply cant. But I have to explain people how to deal with me. When do I like to be helped, when do I refuse help.
What if people ignore your disease or exaggerate it?
Tips and questions
I won't provide the answers, yet you may find tips or questions that might help you.
You may even wish to refer friends or family to a page to start communication on one of the topics.
Choose an item by clicking the buttons on the left.
This website is my personal website.
Feel free to comment. (See guest book page.)
My best wishes and ill or not…….
I do hope you enjoy your life. Make it work!

Personal website
Since November 2003
Last edited: 04-2006

About being ill: Your disease in charge?|
Juggling a backpack |
Support by poem |

On dealing with others: Dealing with responses|
Don't tell me... |
To be helped or not? |
Do you help? |
Going out? |

Partner, friends: Live life together |
Do you help? |
Going out? |

About this website: Start here |
To whom...?|
Yours truly|

Chronic Disease and every day life
Personal website at
Feel free to copy for personal use. To publish in any form please contact me.
I do not advise in any medical matter. Please use statements, ideas, remarks to discuss or consider.