Yours truly, about the author

Who am I?

Hi, nice to meet you, I'm Nel.

I wrote these pages.
It's based on my own experiences and ideas about coping with a chronic disease.
And on dealing with the non medical part of being physically challenged.

I'm Dutch and over 40 years old.
I have a partner and two kids.
I work a few days a week and I'm very grateful for that.
Oh, and yes - I have a chronic disease.

I have limited experience with disabilities and physical limitations.
Perhaps better put it this way: my limitations cause no pain and require no hospital visits.
However, they do influence every day decisions extensively.
I write to help myself, to inform my friends and family how to deal with me.
In addition I sincerely hope my thoughts, ideas and questions might help you too.

No two people are the same.

No two diseases are the same.
So I don't think it matters what disease I have.
I don't believe it's that important.

I do hope you will find some useful thoughts or ideas.
I hope reading may help you deal with your disease,
or yourself and friends, family or strangers.
Or perhaps you are related to someone with a disease or handicap.
And you don't know what to do or say.
Trust me, hardly anyone does. So make mistakes, read a bit, and stay in touch.
Oddly enough that seems to be excellent advice!

To all of you: Just Keep Going.
My best thoughts,

Enjoy your part of sunshine,

 

Chronic Disease and every day life
Personal website at http://www.xs4all.nl/~nvwagen/english/
Feel free to copy for personal use. To publish in any form please contact me.
I do not advise in any medical matter. Please use statements, ideas, remarks to discuss or consider.