Summary

Directing your life
Direct as many things as you can
Choose items important to you
Remember
You are in charge
Manage
yourself
Explain
Tell people involved
Explain importance
Often your illness decides for you.
What you can eat, what you can do, when you must stop. It feels like your disease is in charge.
You are ill and you feel you are ill and nothing more.
That's how I feel waiting for a doctor. Making choices on treatment or therapy. Spending the afternoon on bed while my guests party. No longer in control.
It's my firm believe you have to counteract this feeling.
I want to be in charge of parts of my life even if it just concerns the smallest items.
This is what I feel is important. Try to direct your own life. 
As long as you can. Taking control when you can.
And about things you find important.
Still sometimes your disease runs your life.
In some things maybe it will allways do.
But there are always areas to gain control.

For example a garden...
You love to work the garden but you really can't any more? Take control anyhow, let the gardener work exactly according to your wishes. It's your garden and your chosen field of control. This is important to you.
No need to give that up. You can own the controls of your life. You direct.
Explain
What if the gardener is your neighbour? Somehow you feel you cant try to control him? Explain to him how important it is to you. Needing to be in control, especially now you are ill. That you need that about as much as the gardening itself. Find it hard to explain such things?
Ask a friend to explain for you!
Maybe that friend can explain this same item more often to people. It is your garden (your hobby, your car, your room, your nightstand) and if you choose, you can be in charge.
This is hard for others to imagine.
When you are not ill your whole life is yours to control. You direct it completely.
When you get ill, some things you can't control. But I strongly believe explaining this is essential.
And gaining control makes you feel better, always.
No matter how small the area, it is yours!
 

Personal website
Since November 2003
Last edited: 12-2005

About being ill: Your disease in charge?|
Juggling a backpack |
Support by poem |

On dealing with others: Dealing with responses|
Don't tell me... |
To be helped or not? |
Do you help? |
Going out? |

Partner, friends: Live life together |
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Chronic Disease and every day life
Personal website at http://www.xs4all.nl/~nvwagen/english/
Feel free to copy for personal use. To publish in any form please contact me.
I do not advise in any medical matter. Please use statements, ideas, remarks to discuss or consider.