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Read older entries guestbook:

Date: Thu Sep 22 16:16:50 2005
From: Clark Ye
Hello ! It's glad to meet your site here. It touched me so much , that I enjoyed it very much. I just copied some pages down as I want to show them to my friends -------------some are just in a chronic disease ... so to me ! Thank you for your sites !

Date: Wed Apr 27 12:57:36 2005
From: ernie
Very good site. I appreciate you taking the time to write this and translate it. I needed a place to find this information.

Date: Tue Apr 19 15:36:52 2005
From: Kathi
What a beautiful place you have here.
Thank you for all the wonderful words. I have lived with a chronic illness all my life. It is so nice to see written down some of the things that I try to practice.
Thanks again. Kathi

Date: Tue Apr 19 09:57:04 2005
From: Nel
Dear writers in my guestbook, thank you all very much.
I really appreciate your feed back. It's inspiring.
My best wishes to all of you.

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Date: Tue Apr 19 03:21:21 2005
From: Martha
Thank you for a very informative site!
It helps so much to see or experience through another persons "eyes". Thank you.
I've also enclosed a short story that has had a great impact on my life.
A young woman went to her mother and told her about her life and how things were so hard for her. She did not know how she was going to make it and wanted to give up. She was tired of fighting and struggling. It seemed as one problem was solved a new one arose.
Her mother took her to the kitchen. She filled three pots with water. In the first, she placed carrots, in the second she placed eggs and the last she placed ground coffee beans. She let them sit and boil without saying a word.
In about twenty minutes she turned off the burners. She fished the carrots out and placed them in bowl. She pulled the eggs out and placed them in a bowl. Then she ladled the coffee out and placed it in a bowl. Turning to her daughter, she asked, "Tell me what do you see?" "Carrots, eggs, and coffee," she replied.
She brought her closer and asked her to feel the carrots. She did and noted that they were soft. She then asked her to take an egg and break it. After pulling off the shell, she observed the hard-boiled egg. Finally, she asked her to sip the coffee. The daughter smiled , as she tasted its rich aroma. The daughter then asked. "What's the point, mother?"
Her mother explained that each of these objects had faced the same adversity-boiling water-but each reacted differently. The carrot went in strong, hard and unrelenting. However after being subjected to the boiling water, it softened and became weak. The egg had been fragile. Its thin outer shell had protected its liquid interior. But, after sitting through the boiling water, its inside became hardened. The ground coffee beans were unique, however. After they were in the boiling water they had changed the water.
"Which are you?" she asked her daughter. " When adversity knocks on your door, how do you respond? Are you a carrot, an egg, or a coffee bean?" Think of this: Which am I? Am I the carrot that seems strong, but with pain and adversity, do I wilt and become soft and lose my strength? Am I the egg that starts with a malleable heart, but changes with the heat? Did I have a fluid spirit, but after death , a breakup, a financial hardship or some other trial, have I become hardened and stiff? Does my shell look the same, but on the inside am I bitter and tough with a stiff spirit and hardened heart?
Or am I like the coffee bean? The bean actually changes the hot water, the very circumstance that brings the pain. When the water gets hot, it releases the fragrance and flavor. If you are like the bean, when things are at their worst, you get better and change the situation around you. When the hours are the darkest and trials are their greatest do you elevate to another level? How do you handle Adversity?
ARE YOU A CARROT, AN EGG, OR A COFFEE BEAN?

Date: Tue Apr 12 08:13:43 2005
From: Nitu
I really like your site.

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Date: Sun Feb 20 22:06:18 2005
From: Linda
I am so happy to have found this website.
I am a Parish Nurse at my church and have been asked to speak to a group of Ministers on the subject of Chronic Illness and how to work with congregational members in need.
I have found your website to be so inspirational and informative. This is something you must be so proud of and I am grateful for the insight it has given me.

Date: Tue Feb 15 05:22:51 2005
From: Don
Thanks for your outreach.
Your pages will help many people, especially through the early days of finding themselves with a chronic condition.

Date: Sat Feb 5 14:18:56 2005
From: Dianne
Thanks, Nel. I found your words encouraging.
The site is so easy to navigate as well as helpful, and encouraging.
I'm in denial right now. I know this illness gives me a terrific opportunity to reorder my life, my relationships, and have a fullness I never imagined.
You have encouraged me to try.

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Date: Fri Feb 4 08:32:27 2005
Wow what a nice site... specially the layout and images.

Date: Wed Jan 12 23:08:21 2005
From: Ravenstardust
This is a fantastic site thank you so very much for createing it. I love "The backpack"
Blessed Be Ravensong

Date: Mon Jan 3 23:46:03 2005
From: Chris Hoover
Nel, I am a student nurse researching patients with chronic illnesses. Thank you for your insights.
I want to be the kind of nurse that does not consider my patient just the "heart in 419" or the "gallbladder in 712".
I suffer from a chronic illness myself and know how that feels. Good luck and Thank You again.

Date: Fri Nov 5 20:14:36 2004
From: Alex
Thanks Nel, for your thoughts and words and for sharing.
I found your comments encouraging for anyone who has ever carried a burden -- whether it be chronic illness, grief, anxiety, or whatever.
I especially liked your backpack reference, and I think I'll consider that the next time I struggle with fear and anxiety (plus I love to hike and camp!).
It's funny and crazy how our mind can limit us with negative talk unless we control it or distract it with positive thoughts.
I agree, let Love say, "it is what it is..." and nothing more. Your friend and student.....Alex

Date: Thu Oct 7 04:55:52 2004
From: Dena
Dear Nel, It is great to find someone who is in touch with what it feels like have an illness that won't ever go away.
I am newly diagnosed with a form of Muscular Dystrophy. Reading your segment on "Your disease in charge?" helped me tremendously.
Keep adding to your insights.
Thanks again Dena

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Date: Mon Oct 4 18:07:57 2004
From: Darren
http://www.eye-floaters.com
A very touching website, beautiful site :)

Date: Fri Sep 17 03:42:09 2004
From: Greta F.
I feel honoured for the insight and personal information you have shared with the world community, and can see the potential that what you have created will make this world a better place. Thank you.

From: Tina
I would like to thank the creator of the site
for all the effort and thought
that went into this enjoyable helpful piece of work

From: Stephanie http://www.msoutreach.com
Date: Wed Sep 8 15:27:34 2004
Life is certainly strange. I woke up this morning completely overwhelmed with work - my illness, responsibilities for husband & kids & puppy, and an array of other varied small jobs that I can't possible get done today.
Your positive website was just what I needed to read in order to 'SNAP OUT OF IT.'
I'm not a gushy person. In fact, I still manage to muster quite a bit of angry at doctors and my disease in general but even that emotion is work.
I hear a quiet and delibrate ordering of priorities and wisdom in the perspective in which you handle your 'issues.'
Now, I feel inspired and encouraged not defeated at 6:30 am. Thanks, S.W.

From: bozodog http://www.subratam.org
Date: Sat Sep 4 18:42:40 2004
What a beautiful site. Nice cheery colors.
Your words are wonderful, and everyone should live with that wisdom.
Love, luck, and happiness to you and yours.

From: Subratam www.subratam.org
Date: Sat Sep 4 18:29:24 2004
I am very impressed and I really like the positive attitude and very good content in the website.
Carry on the great work friend and take care
Subratam

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From: Christel
Date: Wed May 5 14:11:12 2004
"THE POSITIVE SIDE OF LIFE"
Living on Earth is expensive, but it does include
a free trip around the sun every year.
Birthdays are good for you;
the more you have, the longer you live.
Happiness comes through doors
you didn't even know you left open.
Ever notice that the people who are late are often much jollier than the people who have to wait for them?

Most of us go to our grave with our music still inside of us.
You may be only one person in the world,
but you may also be the world to one person.
Some mistakes are too much fun to only make once.
Don't cry because it's over; smile because it happened.
We could learn a lot from crayons:
some are sharp, some are pretty, some are dull, some have weird names, and all are different colors....
but they all exist very nicely in the same box.

A truly happy person is one
who can enjoy the scenery on a detour.

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Personal website
Since November 2003
Last edited: 12-2005

About being ill: Your disease in charge?|
Juggling a backpack |
Support by poem |

On dealing with others: Dealing with responses|
Don't tell me... |
To be helped or not? |
Do you help? |
Going out? |

Partner, friends: Live life together |
Do you help? |
Going out? |

About this website: Start here |
To whom...?|
Yours truly|
Guestbook|
Links|

Chronic Disease and every day life
Personal website at http://www.xs4all.nl/~nvwagen/english/
Feel free to copy for personal use. To publish in any form please contact me.
I do not advise in any medical matter. Please use statements, ideas, remarks to discuss or consider.